Welcome to my blog! My name is Kacie and I am in love! I am in love with my amazing husband, and my two adorable little girls. I am in love with everything that has to do with weddings and I absolutely love cute little families and adorable chubby babies! Nothing makes me happier than to be able to capture all the love that surrounds this beautiful world and to share it with my clients. I try to keep up with my blog every few days, so be sure to check back often for all the fun things I'm working on!

We need your help!

Tuesday, January 19, 2010

Last year, I did a photoshoot for this sweet little girl Gwendolyn,
and this handsome little fella Micah.

They both suffer from Spinal Muscular Atrophy. Most people have not even heard of SMA or realized it is the leading genetic killer of infants. It is a terminal, degenerative disease that results in the loss of nerves in the spinal cord and the weakness of the muscles connected with those nerves. SMA impacts the ability to walk, stand, sit, eat, breathe and even swallow. The mind and spirit are no different from that of a healthy baby, but the body eventually fails. Typical babies with SMA Type 1 have a life expectancy of between one and two years and they require around-the-clock medical assistance and monitoring.

Please take a moment to watch this touching video to learn
more about Gwendolyn & Micah and the Chase Contest:

Here's the scoop on how you can help...

JP Morgan Chase Bank has committed to donating $5 million dollars to non-profit organizations, $1 million of which was already distributed in December. Through a Facebook voting system, the top 100 non-profits were awarded $25,000 in cash. The Gwendolyn Strong Foundation was one of these winners (yippeee!), and 100% of the funds were sent directly to UC Irvine's SMA research team. Next up is the final round of voting for the BIG prize: $1,000,000. One million!! This voting is all done through Facebook, and ends this Friday 1/22/2010. Imagine this: $1,000,000 towards SMA research could actually end this disease. Not "get the ball rolling" on research, not "hope for a cure," but actually end it. And, most importantly, it could save Gwendolyn & Micah's life. The research that is sooooo close to FDA approval is one that could affect babies who already have SMA (like Gwendolyn & Micah), and could completely remove them from symptoms.

(It only takes 30 seconds!)
  • Go to VoteForSMA.com -- This will take you to the Gwendolyn Strong Foundation Chase campaign site on Facebook. This is where you vote.
  • You may have to become a fan first
  • Click on the "Vote For Charity" button to vote.
  • You must have a Facebook account to vote. If you don't have a Facebook account you can easily sign up for one by going to VoteForSMA.com and following the simple Facebook signup instructions.
  • You may only vote for Gwendolyn Strong Foundation once, but GO NUTS! telling anyone and everyone you know to go to VoteForSMA.com to vote for the Gwendolyn Strong Foundation.
Info On SMA
  • SMA -- Spinal Muscular Atrophy -- KILLS more young children than ANY other inherited disease -- 50% die by their 1st birthday, 90% by their 2nd.
  • 1 in 40 people UNKNOWINGLY carries the SMA gene -- few have any known family history.
  • SMA is degenerative and terminal. Although born healthy, babies eventually lose the ability to walk, sit, eat, breathe, and even swallow. The mind is NEVER impacted and children with SMA are bright and social.
  • There is currently NO treatment and NO cure, but there is HOPE!
  • The National Institutes of Health (NIH) coined SMA as the disease "CLOSEST to TREATMENT".
  • Researchers say a CURE is possible in a few years -- IF given adequate funding.
  • SMA is considered a "model" disease and many scientist believe it is a "gateway" to answers for countless other diseases, including: ALS/Lou Gehrig's, spinal cord injury, Alzheimer's, Parkinson's, the muscular dystrophies, and even some forms of cancer.

1 comment:

The Fallons said...

Beautiful Post! Thank you Kacie.

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